PAG Corner
PAGs at REDRESS
Patient advocacy groups (PAGs) play a pivotal role in rare disease research by giving a strong collective voice to patients and their families, ensuring their needs and perspectives are meaningfully represented in relevant forums. PAGs bridge gaps between researchers, clinicians, policy makers, and affected communities, offering essential educational resources, emotional support, and practical insights that help shape relevant, patient-centric research agendas.
2025
PAG Corner
PAGs from previous REDRESS
Molecular Diagnostics, Counseling, Care and Research Center (MDCRC)
Metabolic Errors and Rare Diseases Organisation (MERD) of India
Tuberous Sclerosis Complex (TSC) Alliance India
Sjogren’s India
ALS Care & Support Foundation
IEM Support Charitable Trust
Krishnan Family Foundation
CureSMA foundation of India
Indian Rett Syndrome Foundation
Indian Prader-Willi Syndrome Association
Fragile-X Society India
Huntington’s Disease Society of India (HDSI)
Indian Association of Muscular Dystrophies
Swavlamban Foundation
Primary Immunodeficiency Patients Welfare Society (PIDPWS)
Molecular Diagnostics, Counseling, Care and Research Center (MDCRC)
Counseling
(MDCRC) is a not for profit NGO working on Neuro Muscular genetic disorders viz.
Metabolic Errors and Rare Diseases Organisation (MERD) of India
Tuberous Sclerosis Complex (TSC) Alliance India
Sjogren’s India
ALS Care & Support Foundation
IEM Support Charitable Trust
Krishnan Family Foundation
CureSMA foundation of India
Indian Rett Syndrome Foundation
Indian Prader-Willi Syndrome Association
Fragile-X Society India
Huntington’s Disease Society of India (HDSI)
Indian Association of Muscular Dystrophies
Swavlamban Foundation
Hiroshi Tanaka
Festival director
Experienced event organizer ensuring smooth
festival logistics and operations.
Hiroshi Tanaka
Festival director
Experienced event organizer ensuring smooth
festival logistics and operations.
Frequently asked questions
Who can attend REDRESS 2025?
Students, researchers, academicians, clinicians, public health professionals, NGOs, patient groups, and industry stakeholders are welcome.
Is there a registration fee?
Yes.
Students (MSc, PhD): Free
Researchers & Faculty: Free/Paid (based on selection)
Clinicians & Industry: Paid
Exact fees will be listed on the Registration page.
How do I submit an abstract?
Go to the “Abstract” page and follow the guidelines. You can submit under predefined categories via a Google Form.
Can I present if my abstract is accepted?
Yes, shortlisted abstracts will be presented during dedicated oral/poster sessions. Certificates will be issued.
Do I get a participation certificate?
Yes, certificates will be awarded to all registered attendees who attend 70% or more of the sessions.
Can I attend virtually?
Select sessions will be live-streamed. Virtual access details will be shared closer to the event.
Are travel or accommodation provided?
No. Attendees are expected to arrange their own travel and stay. However, discounted rates at partner hotels will be shared.
Can I attend only one day?
Yes, day-wise attendance is allowed but full registration is required.
What are PAG Corners?
They are dedicated spaces for Patient Advocacy Groups to share their work, conduct sessions, and network with stakeholders.
Who do I contact for queries?
Email us at contact@redressconf.org
Who can attend REDRESS?
REDRESS welcomes students, researchers, academicians, clinicians, public health professionals, NGOs, patient groups, and industry stakeholders.
Is there a registration fee?
Refer to the “registration” page for details of fee
How do I submit an abstract?
Go to the “Abstract” page and follow the guidelines. You can submit under predefined categories via a Google Form.
Can I present if my abstract is accepted?
Yes, shortlisted abstracts will be presented during dedicated oral/poster sessions. Certificates will be issued.
Can I attend virtually?
No, the summit will not be streamed online. We strongly encourage physical attendance to facilitate in-person interactions, networking, and meaningful discussions.
Can non-presenting authors attend the summit?
Yes, co-authors and other colleagues are welcome to attend after registering for the event.
Are travel or accommodation provided?
Accommodation is provided for one presenter per accepted abstract. Travel to and from the venue must be arranged by the participant.
What is a PAG Corner?
PAG Corners are dedicated spaces where Patient Advocacy Groups can showcase their work, have discussions, and engage with researchers, clinicians, and other stakeholders.