About Us
About REDRESS
The Rare Genetic Diseases Research Summit (REDRESS) is an annual event co-organized by the Tata Institute for Genetics and Society (TIGS) and the Organisation for Rare Diseases India (ORDI). This crucial summit serves as a platform to bring together a wide range of stakeholders including researchers, clinicians, government officials, patient advocates, and industry leaders to accelerate progress in the field of rare diseases within India.
The heartbeat of REDRESS: core values
Cultural authenticity
We honor and preserve the genuine traditions of Matsuri, respecting Japan’s historical and cultural heritage.
Community connection
Matsuri brings people together, fostering shared joy and unity through the vibrant traditions of Japanese festivals.
Cultural understanding
Through education and celebration, we inspire deeper appreciation of Japan’s timeless cultural values and rich traditions.
Celebratory moments
Capturing the vibrant energy of Matsuri, we create unforgettable experiences that celebrate life, culture, and community together
The Rare Genetic Diseases Research Summit
The primary objective of REDRESS is to foster a collaborative ecosystem for the indigenization and acceleration of rare disease diagnostics, therapeutics, and disease management. By focusing on homegrown approaches, the event addresses the unique challenges faced by the large and diverse Indian population. Discussions at the summit cover a broad spectrum of topics, from cutting-edge research and the application of new technologies like gene editing, mRNA technology, diseases modelling to the intricacies of clinical trials and regulatory policy.
Through a series of brainstorming sessions and panel discussions, REDRESS facilitates the exchange of ideas and the creation of actionable plans. The summit aims to build awareness and improve access to resources and hope for the millions of people in India affected by rare genetic diseases.
Tata Institute for Genetics and Society
The Tata Institute for Genetics and Society (TIGS), founded in 2017, is a non-profit research institute that aspires to develop solutions to challenges in human health and agriculture. TIGS is a unique initiative of the Tata Trusts to support applications of cutting-edge science and technology in genetics and genomics to solve societal problems of the country.
Website : https://tigs.res.in/
Organization for Rare Diseases India
ORDI is a national umbrella organization representing the collective voice of all patients with rare diseases in India, setup as a section 25 non-profit company.
ORDI’s mission is to be the strong united voice for all rare diseases in India, to reduce inequalities and ensure that people living with rare diseases have access to the same resources as any other population
Website : www.ordindia.in
The cultural essence of Matsuri
Sacred beginnings
Ancient Shinto rituals honoring kami for harvests, protection, and communal harmony.
Shared celebrations
Generations gather to dance, feast, and carry mikoshi shrines in vibrant processions.
Seasonal connections
Festivals mark spring blossoms, summer stars, autumn moons, and winter snow.
REDRESS is not just a conference, it’s a movement to foster equitable research ecosystems in South Asia and beyond.
